Virtual Paraplegia

MAJOR SCI-RELATED INTERNET SITES  

By Regina Martin, PhD, and Russ Anderson.

Under Construction


For Additions, Updates, or Corrections: mailto:russa@mt.net
You are visitor  since 1/31/97     Links.



1)     General Sites
2) Research oriented sites
3) Associations
4) Hospitals and specialized centers
5) Home pages
6) Newsgroups and discussion lists
7) Medical articles and bibliographies
** European sites
Last update : 2/10/1997
1)GENERAL SITES

Spinal Network; The total resource for wheelchairs and SCI
http://www.newmobility.com/spinal.htm SCI Connection http://www.chmela.com/parente/sciconn/ Disability Solution Page http://www.albany.net/~cacad/dsp/ Foreign Resources on Disabilites (very comprehensive Japanese site) http://www.dais.is.tohoku.ac.jp/%7Eiwan/foreign_res.html SCI Forum http://weber.u.washington.edu/~rehab/sci/scif.html SCI A NARIC Resource Guide from the National Rehabilitation Information http://www.cais.net/naric/sci.html Guide for People with SCI from the National Rehabilitation Information Center USA http://www.rehabnet.com/rehabftp/sciguide.txt Neurosciences on the Internet http://www.lm.com/~nab/ http://www.genetics.gla.ac.uk/neil/index.html http://ilsebill.biologie.uni-freiburg.de/neuromirror html/index
Neurosciences Database http://www.acsiom.org/nsr/neuro.html
**Paraplegia, SCI, Paralysis. (Italian site) http://www.geocities.com/TimesSquare/2459/parapl.html
SCI Web http://www.sci.rehabm.uab.edu/
Links and directories, Massey University, SCI and Conditions. Auckland, New Zealand http://www.massey.ac.nz/~rchweb/spinlink.htm Spinal Cord from Handitel, a disability related network http://www.santel.lu:12000/HANDITEL/wwwlinks/spinal.html
YPN Mobility Impairment Links to various SCI and disability sites http://www.ypn.com/topic/984.html
FAQ about SCI University of Alabama, Birmingham, AL USA http://www.sci.rehabm.uab.edu/docs/faq.htm
National SCI Statistical Center (idem) http://www.sci.rehabm.uab.edu/docs/nscisc.htm
SCI Notebook - adaptive equipment - autonomic dysreflexia - bowel and bladder management etc. http://www.charweb.org/health/rehab/scin.html
Healthtouch Info BI, SCI and Stroke http://www.healthtouch.com/level1/leaflets/104947/104997.htm
The Cleveland Clinic Foundation, Department of Anesthaesiology. Spinal Cord Trauma http://www.anes.ccf.org:8080/PILOT/NEURO/sci.htm
The International Directory of Disability Media http://indie.ca/natldir/list2/l2000018.htm
Head, Neck and Back Injuries http://www.amherst.edu/~cdsulliv/bruss/emer/hnb.html
Home Health Care. Paralysis and SCI General Information; Patient and Caregiver Info http://monticello.avenue.gen.va.us/Health/HomeHealth/paralysis.html
NASA Gopher Server about SCI gopher://netsrv.casi.sti.nasa.gov:70/7waissrc%3a/RECONselect.src?spinalcord injury
Neurotrauma Law Center http://www.neurolaw.com/
** Die Fördergemeinschaft der Querschnittgelähmten http://users.aol.com/behindert/fgq.htm New Mobility Greatest Hits Pages. Pain and SCI http://www.newmobility.com/gh/ghpain.htm
2)RESEARCH ORIENTED SITES
Spine & Nerve Center at Mass General Hospital/Harvard http://neurosurgery.mgh.harvard.edu/spine-hp.htm#OtherSCIInfo
Airway Hyperresponsiveness to Methacholine in Subjects With Spinal Cord Injury. Effie Singas, MD; Marvin Lesser, MD; Ann M. Spungen, EdD; William A. Bauman, MD; and Peter L. Almenoff, MD, FCCP http://www.chestnet.org:80/october/T6512.html Cure Paralysis Now Homepage http://www.cureparalysis.org/ SCI Research Page http://www.cureparalysis.org/drs/index.html SCI research Highlights from the National Institute of Neurological Disorders and Stroke http://www.nih.gov/ninds/healinfo/disorder/sci/scispec.htm
SCI Research Center University of Manitoba, Canada http://www.scrc.umanitoba.ca/
Collaboration on repair disorder from the University of British Columbia, Canada http://cord.ubc.ca/
Spinal Cord Injury Research, Bellevue Hospital New York http://mcns10.med.nyu.edu/research/SCI.html
Clue to healing Spinal Cord, University of British Columbia, Canada http://nce.nserc.ca/impact/spinal.htm
Spine Surgery Homepage http://www.spine-surgery.com/
SCI Forum University of Washington, Seattle USA http://weber.u.washington.edu/~rehab/sci/scif.html
Thomas Jefferson University, Philadelphia, PA Neuro implant Program http://he1.uns.tju.edu/neuro/
Reeve-Irvine Research Center University of California, Irvine http://www.reeve.uci.edu/~reeve/ Clue to healing Spinal Cord from Neuroscience Network, Canada http://nce.nserc.ca/impact/spinal.htm TBI & SCI Research Projects, San Jose, California, USA http://members.aol.com/TBISCIProj/TBISCIProj.html#SCI Project The Miami Project to cure Paralysis http://gsni.com/mia-proj/curepar1.htm Parastep http://www.chattanooga.net/news/healthwatch/hw34.html
International Virtual Symposium. University of MontreaL Ventilator dependent quadriplegic patients http://www-emc.med.umontreal.ca/symposium/quad.htm

3) ASSOCIATIONS

** Association des Paralysés de Suisse http://www.etatne.ch/hapi/aspr.htm ** Associazione H81: http://www.interplanet.it/h81/informazioni.html ** Coordinamento Para-tetraplegici del Piemonte http://assioma.com/cp/home.htm ** Associazione Italiana Paraplegici: mailto:aip@flashnet.it (no home page yet) National Paraplegia Foundation http://www.basicomputer.com/npf.htm ** Paraplegia - Paralysis, Spinal Cord Injuries. Italian Site http://www.aspide.it:80/freeweb/librarsi/parapl.htm ** International Society for Medical Paraplegia, 1997 Meeting http://meetings.nature.com:80/meeting/1997051306 T 13 Charities. A Foundation for Spinal Cord Injuries http://www.t13charities.org/index.html ** Associazione Paraplegici di Lombardia http://www.associazione.paraplegici.gpa.it/ National Spinal Cord Association http://www.spinalcord.org/ ** ARDIM asbl Bruxelles, Belgique Association consacrée à la promotion de la recherche sur le traitement deslésions médullaires http://artemis.arcadis.be/ardim/Default.nclk
** Association des Paralysés de France http://acin.edi.fr/apf/
** V.Z.W. Piekernie, Belgique http://www.ping.be/piekernie
Association des Paraplégiques du Québec http://www.craph.org/apq/apq-home.htm
**International Medical Society of Paraplegia http://www.who.ch/programmes/ina/ngo/ngo-95.htm http://www.geneva-international.org:80/GvaIntl/gi/egi/egi138.htm ** International Society for Medical Paraplegia, 1997 Meeting http://meetings.nature.com:80/meeting/1997051306
American Paralysis Association http://teri.bio.uci.edu/paralysis/
SCI Stroke and Paralysis Support Association http://neurosurgery.mgh.harvard.edu/paral-r.htm#AASCIPSW
Think First. Canadian SCI support association http://www.medi-fax.com/thinkfirst/thinkfirst.html
Mike Utley Foundation, dedicated to find a cure for SCI http://www.imageone.com/MikeUtley/
** Spinal Injuries Associations from UK http://www.jgrweb.com/SIA/index.html
RVL Score International Robbie Vierra-Lambert Spinal Cord Organization for regaining Excellence http://www.rvlscore.org/
Christopher Reeve Homepage http://web.syr.edu/~ajgould/reeve.html
National SCI Association ( Unofficial) http://www.trader.com/users/5010/1020/nscia.htm#theTop
SCI Hotline (Association supported by Paralyzed Veterans of America) http://members.aol.com/scihotline/index.html
Spinal Cord Society Homepage Research supporting Association from Minnesota http://members.aol.com/scsweb/private/scshome.htm
** Spinal Associations UK http://www.connect.org.uk/merseyworld/glaxo/sia.html
Canadian Paraplegic Association http://indie.ca/cpa/indextxt.html

4)HOSPITAL AND SPECIALIZED CENTERS
The Model SCI System, sponsored by the National Institute on disability and Rehabilitation research , with links to the 18 US Model SCI systems. http://www.sci.rehabm.uab.edu/docs/modsys96.htm ** The International SCI and Rehabilitation Centre Royal Buckinghamshire Hospital, Bucks U.K. http://www.royalbucks.co.uk/isu.htm Northwest Regional SCISystem http://weber.u.washington.edu/~rehab/sci/ Rehabilitation Learning Center Harborview Medical Center, Seattle WA USA http://weber.u.washington.edu/~rlc/
Craig Hospital, Englewood, Colorado, USA http://www.csn.net/rehab/
Michigan Institute for SCI, Ann Arbor, Michigan USA http://http2.sils.umich.edu/~degen/docu5.html
SCI Center, Bellevue Hospital, New York USA http://www.med.nyu.edu/clnres95/spincord.htm
SCI Burke Rehabilitation Hospital White Plains, NY USA http://www.burke.org/spine.html
Spinal Cord Injury Rehab. Shriners Hospitals http://pagemaker.com/~shriners/spinal.html
Good Sheperd Rehabilitation Hospital, Allentown PA http://www.ot.com/goodshepherd/spinal.html
Virginia Commonwealth University; Medical College of Virginia, Richmond, VA Department of Physical Medicine and Rehabilitation http://griffin.vcu.edu/html/pmr/
Midwest Regional SCI Care System http://www.nwu.edu/spine/
Centre François-Charon, Montreal, Canada http://www.craph.org/cfc/cfc-serv/lesion.htm

5)HOME PAGES

Jim Lubin's home page http://www.eskimo.com/~jlubin/
Wise Young, MD 's Home Page http://mcns10.med.nyu.edu/faculty/Young.html Thomas Parker'sHome Page http://members.aol.com/TJPathome/index.htm ** Mohammad Farooque Ph.D. Home Page http://www.patologi.uu.se/neuro/faro/faro.html ** Li Gui Lin, Ph.D. Dpt of Neuropathology, Uppsala University, Sweden http://www.patologi.uu.se/neuro/li/li.html Greg Wickenburg home page http://www.eskimo.com/~greg/
Breezy's SCI Home page http://www.icanect.net/~breezy
Dean Joyce Home Page http://members.aol.com/c67quad/c67quad.htm
Claire Hulsebosch's home page (University of Texas Medical School) http://cellbio.utmb.edu/hulseb/hulseb.htm
Catherine Britell's MD Homepage http://weber.u.washington.edu/~britell/sci_intro.html
Don's SCI Homepage http://www.biddeford.com/~dlappin/spinal.html
David Burton's Home Page http://members.gnn.com/mcscmptr/wheel.htm
John A Beal, Professor . Pain Pathways in the spinal cord http://gradsch.shreveport.lsumc.edu/gradsch/anatomy/beal.htm
** Richard Coppen's home page http://valhalla.vossnet.co.uk/d/dickibus/rehab.htm#regeneration

6) NEWSGROUPS AND DISCUSSION LISTS
Ventilator users Mailing list http://www.eskimo.com/~jlubin/disabled/ventuser.htm Quadriplegic Mailing list http://www.eskimo.com/~jlubin/disabled/quadlist.htm Spinal Cord Injury Peer Net scipin-l@health.state.ny.us (to subscribe send an email to listserv@health.state.ny.us in the body of the message write : subscribe scipin-l your name) Newsgroup of Cure Paralysis Now alt.med.cure-paralysis Discussion group of the American Paralysis Association http://teri.bio.uci.edu/paralysis/

7) MEDICAL ARTICLES AND BIBLIOGRAPIES

Free MEDLINE on the Internet http://www.HealthGate.com/HealthGate/MEDLINE/search.shtml http://www.medscape.com http://www.healthy.net/Library/search/medline.htm
The Virtual Medical Library http://www.med-library.com/ ** Traumatismes rachidiens et médullaires. Hôpital Purpan. Toulous.e France http://www.med.univ-rennes1.fr:80/cerf/edicerf/NR/NR020.html 4-Aminopyridine http://www.inforamp.net/~csro/4ap2.htm http://www.med.nyu.edu/clnres95/spincord.htm#spinres
Bibliography from Michelle Szabo, MD and Gregory Crosby, MD, from Mass General Hospital, Boston Thoracic Aorta Surgery http://ira-mac.ucsf.edu/snaccweb/BIB/SCI5.html
Therapy http://ira-mac.ucsf.edu/snaccweb/BIB/SCI6.html
Electrolyte Abnormalities http://ira-mac.ucsf.edu/snaccweb/BIB/SCI4.html
Cardiovascular and respiratory Functions http://ira-mac.ucsf.edu/snaccweb/BIB/SCI2.html
Clinical Considerations http://ira-mac.ucsf.edu/snaccweb/BIB/SCI3.html
Physiology, General http://ira-mac.ucsf.edu/snaccweb/BIB/SCI1.html
Localisation dans la moelle épinière des centre nerveux régénérateurs de la locomotion. http://lucie.cnrs-bellevue.fr/cnrsinfo/n22a2.html Airway Hyperresponsiveness to Methacholine in Subjects With Spinal Cord Injury* Effie Singas, MD; Marvin Lesser, MD; Ann M. Spungen, EdD; William A. Bauman, MD; and Peter L. Almenoff, MD, FCCP http://www.chestnet.org:80/october/T6512.html
Injuries of the Spinal Cord Part I and II general articles from the Handbook of Clinical Neurology http://www.elsevier.com/catalogue/SAH/155/05700/05701/504519/504519.html
Health Foundation Course (EDIS, technical article) http://136.159.135.227/Rehab/Courses/hf551/adult/spinalcord.html
Bibliography; SCI General Physiology gopher://gasnet.med.yale.edu:70/00/Bibliographies/SNACC/Spinal-Injury
Statistics on SCI. Article http://www.uniontrib.com/science_city/medicine/medical_stories/ medicine960124/medicine960124b.html
Altered MP pharmacokinetics may explain equivocal restoration of useful motor functions http://gema.library.ucsf.edu:8081/Originals/SAEMabs/SA363.html
Mechanisms of secondary injury to Spinal Cord axons in vitro http://www.at-home.com/NEURO/volumes/vol-16.02/545.html
Functional restoration of grasp in quadriplegia http://guide.stanford.edu/people/valero/sfo.htm Technical solutions for modifying the cochlear implant Mini-22 implantable stimulator to a portable FES device for paraplegic standing http://funsan.biomed.mcgill.ca/~funnell/embc95_cd/texts/404.htm Don't forget to check our Arrivals!